UPDATE FROM AMANDA (3 am)

During the night his little I. V. collapsed. They brought in a special I.V. team to get him another I.V. I was glad he already had it in place when I got there. It is now on his leg. This is the same site that went bad in the other hospital. I know veins regenerate, but in one week's time he still has to be sore. I just pray this one stays until we know how long this is going to last. When I got there he was doing ok, in fact they were making plans to move him to a "step down" from the NICU. After the move, I was feeding, burping, and holding him, and he started his little shakes again. At first he just shakes an arm or a leg, but then I noticed his little chubby cheeks shaking. I laid him down and just watched him for a minute and it got worse. I called the nurse over to see it and she agreed it was not a startle reflex(duh) and she went to get the doctor. The doctor came over and watched him for a minute and then tried to get him to stop shaking and she couldn't. She said a baby that is shaking you can stop by touching certain reflex points or by holding them tightly, however since she couldn't stop it she labeled it as tremors and ordered more blood work to be done. As hard as it was to watch him shake, I was happy they saw it and sooo thankful to God I was there to catch it and call the nurse over. The nurses are nice and good, but they can't sit and stare at my baby alone. Believe me, Rhett is not their worst case.We do not know how people go through difficult times without believing and trusting in God, knowing He alone is the giver and taker of life and that everything happens for a reason. We are trusting Him. Anyways, I am so thankful the doctor saw his tremors and it made me realize how important it is for me to be there right now. I am his voice crying out for help for him. It's all I can do right now. I informed them that this was not the seizure we saw on Sunday, but it is the shaking that got gradually worse Fri. and Sat. which led up to the seizure. They came and drew more blood on him and then a phone call came in saying his blood had clotted by the time it had got to the lab and they would have to do it again. It is just a stab in my heart to hear that. He has been stuck sooo many times, I almost cannot keep my composure when they tell me they are doing it again. They finally got the labs and tested him for calcium and some other things (dietary, I think) and everything came back normal. We are happy yet concerned. It is not that we want them to tell us there is something wrong with our child, but we do not want to ever experience him having a seizure again. Then the dr. said sometimes babies have to work out these nervous system kinks on their own without medicine and just by their systems maturing. That would be great if he didn't need anything and would just grow out of this, and we could handle the shaking, but it is the seizure part that scares us to death. He has already had breathing trouble the first week and we want to be secure that he will not do that again. I left in the afternoon to come home and relieve Connie so she could go to work. She has taken off so much already, but she is such a good babysitter for Rhys and Raegan because she helps give them some consistency during this difficult time.Thanks for everyone's concern for us. This is not the kind of attention we ever wanted to have, yet it's nice to know our friends and family care and are so willing to help us. I know everyone wants to help and asks what we need. Sometimes I feel so lost, I don't even know what we need anymore. Just keep praying this ends soon and they find out if there is something wrong with Rhett or not. We are still waiting for a lot of tests to come back and the spinal comes back on Thursday.Thanks for loving our little baby that I know most of you have never met. He is so precious to us!! Love, Amanda