UPDATE FROM AMANDA -- 7 AM

Yesterday, Wednesday, I got to the hospital about 10:15. Heather watched all of the kids until Connie came back, then Heather took Rhys home with her so Connie could get a nap when Raegan slept. I stayed at the hospital all day. Rhett did well the whole day I was there. He is such a good eater and pooper!! He eats like 3 oz. per feeding and poops about 3 times a feeding. He has gained a pound too! I know all of that is so good for him. When I got there they told me his i.v.. collapsed again and they were happy they found another site. I was happy it happened when I wasn't there and that they already got it in before I got there. I hate hearing that. She told me all tests have come back normal except for one culture that they were gonna watch grow one more day. She said it could be nothing at all but they would watch it. Even if it is something they are already treating him with the antibiotics so he almost has the full treatment for it! (I guess it is normal to start babies on antibiotics before you even know what's wrong=they've done that in both hospitals now) The doctors let me sit in on their meeting about him. They said everything looks pretty good for him, since everything else came back normal. The only other concern was the shaking he did the day before. They recommended a 24 hour video EEG just to be sure this is a normal shake and not something going on in his brain. They sent a neurologist down to examine him and he said he looked healthy, but he totally understood my concerns. My concern is actually not as much with the shaking as it is with what we thought was a seizure on Sunday. We are positive it was not normal behavior! I told him I can handle the shaking, I understand it might just take time for him to grow and mature. That actually sounds great to me. The part that scares Jonathan and I to death is that we might bring him home and he might have another episode and what really scares me is that he's already had breathing problems in his short little life, what if he stops breathing? He was extremely understanding and said he wanted to get another opinion. He came back about an hour later with the head neurologist. She looked older(everyone at this hospital is sooo young! Jonathan and I both said we feel like we're at camp because even the drs. are soo young looking), but I think sometimes with age comes arrogance. She was fiddling around with Rhett, testing all of his reflexes and all she kept saying was, this is the healthiest baby she ever saw. Other comments she made was, "Are you a first time mom?, Of course he might shiver, the weather is getting colder you know, How old are you anyway?" These kind of questions imply I am simply an idiot, a nervous mom. I have probably become a nervous mom, yet that doesn't change what we saw on Sunday. I explained to her all of my concerns. Then Rhett started to shake again. She watched him and moved him around and said it looks to her like normal shaking, it's just more than an average baby. She said with all other tests coming back normal she didn't think it necessary to do the 24 hour EEG. She said to just make a follow up appt. with her and that's it. (I don't really care to do that!) Then the dr. came back in and said they would go ahead with the EEG if we wanted. Jonathan said definitely do it. At least if he does shake on it, we can be reassured it is normal for him and not worry about that part at all. I kinda almost want him to do the seizure on it-I'd rather have him do it there then at home!! Jonathan, Connie, and Raegan came up last night and stayed with Rhett while I took an infant CPR class. They told us Rhett might be able to come home today, if everything else is normal and they schedule the EEG as an outpatient thing. Otherwise he will do that test today and probably come home tomorrow. I get excited about him coming home. Rhys begs for him to come home. We hope and pray that Sunday was an isolated incident and that he will be healthy from here on. I'm just gonna trust God that He has answered our prayers that way if we go home. It is good news that he doesn't have any internal problems. The pku is still pending, they have been checking on that. I still wonder if something is off on his diet, but I guess they tested him for everything. Today I'll go back and see what's going on... I might even come home with him! Even Connie said last night that he got cuter and cuter! Hopefully everyone can meet him soon! Thanks for all of your comments and encouragement, it has been helpful to know our friends care about us. Love, Amanda